SMM master class for children with cerebral palsy and their parents.
Employees of the “Growing Up Together” foundation held a master class on SMM for children with cerebral palsy and their parents.
The beneficiaries of the “I am!” Charity foundation (children with cerebral palsy and their parents) took part in the master class. A total of 11 people participated. “For us, this meeting was a form of leisure”, explained Natalya, one of the participants at the meeting Her daughter Nastya has cerebral palsy. The guests noted that from the point of view of accessibility, the office of the charitable foundation is friendly to people with disabilities: neither those who were in wheelchairs nor those who moved independently had any difficulties.
The master class for children and parents was conducted by Anton Sotnikov, head of the paid traffic unit. We talked about setting up personal accounts and communities. “We assumed that the children would find the topic of social media quite familiar, and that's exactly what happened”, said Anastasia Zaitseva, junior marketer at the “Growing Up Together “Foundation. “It turned out to be quite lively communication. Both the kids themselves and their parents willingly shared their user experience and observations. We, in turn, talked about how we use social networks to solve work-related problems. It turned out to be a very interesting and sincere conversation conducted over a cup of tea”.
“My daughter Nastya loved the venue where the master class took place. And, of course, she adored the friendly atmosphere!” Natalya shared her impressions of the meeting. “The most important thing is that the fund's employees were ready to devote their time to us and were determined to communicate with our children on equal ground. This is a very important and valuable experience for our kids!”.
The head of the online marketing business unit, Daria Prokhorenko, noted that similar meetings in the foundation would continue to take place. “We’re talking about genuine human interest. When you find yourself surrounded by a large number of children with various health issues, you really start to treat this as a kind of norm, you understand that everyone has their own interests and strengths, the kids are all very kind, interesting”, she shared her personal impressions. “If we talk about the professional side of it, then it is clear that SMM is exactly the kind of work that is quite accessible to people with disabilities. Perhaps, over time, these meetings will grow into full-fledged career guidance and training projects”.
Targeted assistance. A window to the world for Anna Lopatkina
SMM master class for children with cerebral palsy and their parents.
The “Growing Up Together” charitable foundation, with the participation of the administration of Naro-Fominsk, Moscow Region, provided help to Anna Lopatkina. The girl faced disability after a car accident.
The tragedy happened about a year ago. Anya and her mother were hit by a car while crossing the street. Her Mom died. Anya was taken to the Center for Pediatric Microsurgery and Traumatology with severe injuries, where she spent nine months and went through two complex surgical procedures. Now Anya has Group 1 disability: she has impaired speech and impaired coordination of movements. She still walks with the help of either a walker or a wheelchair. “Anya is not losing her optimism, is not going into hysterics and she thanks me for my help almost daily,” says her grandmother Galina Sergeevna. After the tragedy, the pensioner took custody of her granddaughter.
After the car accident, communication on social networks became a critical part of the girl's life. It made it possible for her to maintain relationships with old friends and even make new ones. However, going online using a mobile phone is inconvenient for Anya. This is due to the nature of her injuries. Her old computer went out of service and is unrepairable. "On paper, a laptop can be considered a technical means of rehabilitation, but in fact, it is almost impossible to acquire it at the expense of the state," - explained Anya's grandmother.
Narek Sirakanyan, an entrepreneur and founder of the “Growing Up Together” foundation, learned about Anya from Naro-Fominsk and her story. He purchased a laptop for Anya and a special folding tabletop, which allows the computer to be conveniently placed on a wheelchair. “Our ‘Growing Up Together’ foundation specializes in helping children with disabilities. And promoting socialization is one of our priorities,” Narek comments. “As the head of the fund, it was important for me to personally come to talk to Anya and make sure that a good comfortable computer for kids like herself is really something that significantly affects their lifestyle and substantially expands their ability to communicate, study and even work. I think that the gift for Anya was the first step for our foundation. And in the future, we will think about developing such an assistance program throughout the whole country".
“Children like all others” podcast. Episode 2. Cerebral palsy
The second episode of our “Children like all others” podcast has been released. This time our hosts, journalists Ksenia Kryzhanovskaya and Anton Milekhin, have Evgeniya Serikova, a social psychologist and head of special projects of the “Gift to an Angel” charity foundation, as a guest. The episode is dedicated to children with cerebral palsy. Here, we’re presenting three of the most interesting points from the conversation with an expert.
● Only implying children when talking about cerebral palsy is incorrect Many people combine cerebral palsy with children due to the fact that it is diagnosed in childhood, although not at birth,” Evgeniya Serikova explained to the hosts of the program. "As a rule, the diagnosis is made at one and a half to two years old, when parents notice the fact that their child, for example, isn’t sitting down, nor crawling. Or they notice the lag in the development of speech." At the same time, the expert emphasized that cerebral palsy is a lifelong disease and people suffer from it into adulthood. “Among specialists, this association with kids is gradually becoming a thing of the past,” said the program's expert.
● Cerebral palsy is not inherited. “It has been verified that cerebral palsy is not transmitted from parents to children, and even more so through tactile contacts or airborne droplets,” commented Evgeniya Serikova. The expert noted that the most common cause of the disease was a difficult pregnancy and difficult childbirth. For example, hypoxia due to the entanglement of the umbilical cord or a severe infectious disease of a woman during pregnancy. “There are cases when difficult childbirth, resulting in children born with cerebral palsy, is provoked by car accidents or just tripping and falling down on the street,” says Yevgenia Serikova. “The idea that genes or a wrong lifestyle of the parents are to blame for the birth of such children is one of the most painful myths that we are combating. The reality is that no one is immune to this. And looking for someone to blame here is pointless."
● People with cerebral palsy can be socially successful Evgeniya Serikova noted that there are different stages of the disease. In the most severe cases, people with cerebral palsy do not even respond to light. At the same time, if a person has moderate or mild cerebral palsy, they can lead a lifestyle close to normal. “If the intellect is preserved, then the person may well get a high-quality education, have a well-paid job, do business, start a family. There are plenty of such examples among those under our care,” comments Evgeniya Serikova. At the same time, the representative of the “Gift to the Angel” charitable foundation emphasized that regular rehabilitation is fundamentally important for people with cerebral palsy. Ideally, it is necessary to take a specialized course annually at a medical institution, as well as study at home on your own. “The cost of rehabilitation courses reaches half a million rubles, and they are often needed on an annual basis,” - says the podcast expert. “Equipment for home rehabilitation also costs money. Unfortunately, these expenses are not fully covered by state payments. That is why a system of charitable foundations is needed in this area”.
On December 4, the “Growing Up Together” charitable foundation launched a special project called “Good Deeds Industry”: www.dobrodeti.ru
It reminds all of us that there are people with special needs. There are foundations that help special people. Unfortunately, not everyone knows how heavy a burden falls on the funds ...
Creating the “Good Deeds Industry” project, we set two goals before us. First, to share unique statistics on the situation with children with disabilities in Russia. Second, this project is an example of our work in creating media content, one of the functions with which we are ready to help other funds, free of charge.
More than 800 charitable foundations are involved in the problems of children with disabilities in Russia. However, despite the help of foundations, these children remain one of the most vulnerable groups of people in our country. The “Growing Up Together” charitable foundation has collected unique statistics that will help you understand why this is happening.
The project has already received positive reviews from the press and other foundations.
On December 10, in Moscow, at the Lokomotiv stadium arena, a football festival, organized by the “Under the Banner of Good” charity foundation, was held, with the support of the “Growing Up Together” charity fund.
Pupils from the children's boarding school and the orphanage not only played in friendly matches against players of the Russian national football team and showbiz stars FC StarMix and FC Comedy Club but also beat their rivals with a score of 2:1.
The event was attended by many celebrities who posted photos and videos on their social networks, which helped to attract attention to the event.
Such events are very important for children and adolescents who are so lacking of communication. This football day has become a day of unity for all kinds of people.
The “Growing Up Together” Foundation was involved in this event. We actively helped in solving the problems faced by the volunteers, and also helped to organize an e-sports zone. After the football match, everyone could fight in an e-sports battle.